Challenged life: How to live and cope with slow physical decline

Autor/innen

  • David F. Haupt Sigmund Freud Privatuniversität, Berlin - Departement of Psychology

DOI:

https://doi.org/10.15135/2018.6.1.29-45

Abstract

In this research project a retrospective interview with a 32-year-old woman, who has been living with diagnosis of Multiple Sclerosis for more than ten years, was conducted and analysed. Over the course of time, the inner attitude of the research participant towards her disorder altered. Right after getting the diagnosis, her behaviour was shaped by strictly rejecting to ‘have’ the concerning disease. Starting about 3 years ago, a gradual change is described towards an accepting stance to her body abnormalities. But it is not an either-or logic – we have evidence of coexistence of contradictions. This curiosity about simultaneous existing contradictions is the field for negotiating the maintenance of the self-consistency under impending health deterioration.

Literaturhinweise

Bibace, R., Young, S. D., Herrenkohl, L. R. & Wiley, A. (1999). An introduction to partnership in research: Changing the researcher-participant relationship. In R. Bibace, J. J. Dillon, & B. N. Dowds (Eds.), Partnership in research, clinical and educational settings (pp. 3-14). Stamford, CT: Ablex Publishing Corporation.

Brubaker, R. & Cooper, F. (2000). Beyond “Identity”. Theory and Society, 29 (1) 1-47.

Daston, L. (1992). Objectivity and the Escape from Perspective. Social Studies of Science 22, 597-618.

Frenkel-Brunswick (1949). Tolerance toward ambiguity as a personality variable. American Psychologist, 3, 268.

Fuchs-Heinritz, W. (2009). Biographische Forschung. Eine Einführung in Praxis und Methoden. (4. Aufl.) Wiesbaden: VS Verlag für Sozialwissenschaften.

Furnham, A. (2015, December 02). Tolerance of Ambiguity and Uncertainty Avoidance – What sort of people are made very uncomfortable when things are not clear?. A Sideways View. New stirrings in business psychology. Retrieved August 31, 2017, from https://www.psychologytoday.com/blog/sideways-view/201704/the-psychology-queuing.

Hale, E.D., Treharne, G.J. & Kitas, G.D. (2007). The Common-Sense Model of self-regulation of health and illness: how can we use it to understand and respond to our patients’ needs?. Rheumatology, 46 (6), 904-906. doi: 10.1093/rheumatology/kem060

Kant, I. (1787). Kritik der reinen Vernunft. Berlin: Königliche Akademie der Wissenschaften.

Küsters, I. (2009). Narrative Interviews. Grundlagen und Anwendungen. (2. Aufl.). Wiesbaden: VS Verlag für Sozialwissenschaften.

Nagel, T. (1986). The view from nowhere. Oxford: Oxford University Press.

Petrie K.J. & Weinman, J. A. (1997). Perceptions of Health and Illness. London and New York: Routledge.

Potter, J. (2001). Diskursive Psychologie und Diskursanalyse. Translated by: R. Keller and A.

Hirseland. Lecture notes in SFU course ‘Qualitative Research Methods II – SS17’

Rog, D., Burgess, M., Mottershead J. & Talbot P. (2010). Multiple Sclerosis (2nd edition). London: Class Publishing Ltd.

Scolding, N. & Wilkins, A. (2012). Multiple Sclerosis. Oxford: Oxford University Press.

Valsiner, J. (2013). Methodology in a new key: How cultural psychology investigates sign - mediated complexity? Unpublished manuscript.

Valsiner, J. (2016-11-10). Part III. METHODOLOGY AS A CYCLIC PROCESS. Unpublished lecture notes.

Witzel, A. (2000). The problem-centered interview [26 paragraphs]. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 1(1), Art. 22, Retrieved August 31, 2017, from http://nbn-resolving.de/urn:nbn:de:0114-fqs0001228.

Veröffentlicht

2018-03-30

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